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Most of the resources here focus on the historical context for health disparities related to race and ethnicity. If you have suggestions for additional resources, please don't hesitate to fill out the order recommendation form linked below or to email one of our librarians.
Books: Race and Ethnicity
Body and Soul: The Black Panther Party and the Fight Against Medical Discrimination by
Between its founding in 1966 and its formal end in 1980, the Black Panther Party blazed a distinctive trail in American political culture. The Black Panthers are most often remembered for their revolutionary rhetoric and militant action. Here Alondra Nelson deftly recovers an indispensable but lesser-known aspect of the organization's broader struggle for social justice: health care. The Black Panther Party's health activism--its network of free health clinics, its campaign to raise awareness about genetic disease, and its challenges to medical discrimination--was an expression of its founding political philosophy and also a recognition that poor blacks were both underserved by mainstream medicine and overexposed to its harms. Drawing on extensive historical research as well as interviews with former members of the Black Panther Party, Nelson argues that the Party's focus on health care was both practical and ideological. Building on a long tradition of medical self-sufficiency among African Americans, the Panthers' People's Free Medical Clinics administered basic preventive care, tested for lead poisoning and hypertension, and helped with housing, employment, and social services. In 1971, the party launched a campaign to address sickle-cell anemia. In addition to establishing screening programs and educational outreach efforts, it exposed the racial biases of the medical system that had largely ignored sickle-cell anemia, a disease that predominantly affected people of African descent. The Black Panther Party's understanding of health as a basic human right and its engagement with the social implications of genetics anticipated current debates about the politics of health and race. That legacy--and that struggle--continues today in the commitment of health activists and the fight for universal health care.
Call Number: RA448.5.N4 N45 2011 (Ekstrom)
Publication Date: 2011
Caring for Equality: A History of African American Health and Healthcare by
African Americans today continue to suffer disproportionately from heart disease, diabetes, and other health problems. In Caring for Equality David McBride chronicles the struggle by African Americans and their white allies to improve poor black health conditions as well as inadequate medical care--caused by slavery, racism, and discrimination--since the arrival of African slaves in America. Black American health progress resulted from the steady influence of what David McBride calls the health equality ideal: the principle that health of black Americans could and should be equal to that of whites and other Americans. Including a timeline, selected primary sources, and an extensive bibliographic essay, McBride's book provides a superb starting point for students and readers who want to explore in greater depth this important and understudied topic in African American history.
Call Number: WA11.AA1 M33 2018 (Kornhauser) / RA448.5.N4 M33 2018 (Law)
Publication Date: 2018
Doctoring Freedom: The Politics of African American Medical Care in Slavery and Emancipation by
For enslaved and newly freed African Americans, attaining freedom and citizenship without health for themselves and their families would have been an empty victory. Even before emancipation, African Americans recognized that control of their bodies was a critical battleground in their struggle for autonomy, and they devised strategies to retain at least some of that control. In Doctoring Freedom, Gretchen Long tells the stories of African Americans who fought for access to both medical care and medical education, showing the important relationship between medical practice and political identity. Working closely with antebellum medical journals, planters' diaries, agricultural publications, letters from wounded African American soldiers, WPA narratives, and military and Freedmen's Bureau reports, Long traces African Americans' political acts to secure medical care: their organizing mutual-aid societies, their petitions to the federal government, and, as a last resort, their founding of their own medical schools, hospitals, and professional organizations. She also illuminates work of the earliest generation of black physicians, whose adult lives spanned both slavery and freedom. For African Americans, Long argues, claiming rights as both patients and practitioners was a political and highly charged act in both slavery and emancipation.
Call Number: Ebook
Publication Date: 2012
Examining Tuskegee: The Infamous Syphilis Study and Its Legacy by
The forty-year Tuskegee Syphilis Study, which took place in and around Tuskegee, Alabama, from the 1930s through the 1970s, has become a profound metaphor for medical racism, government malfeasance, and physician arrogance. Susan M. Reverby's Examining Tuskegee is a comprehensive analysis of the notorious study of untreated syphilis among African American men, who were told by U.S. Public Health Service doctors that they were being treated, not just watched, for their late-stage syphilis. With rigorous clarity, Reverby investigates the study and its aftermath from multiple perspectives and illuminates the reasons for its continued power and resonance in our collective memory.
Call Number: R853.H8 R48 2009 (Ekstrom)
Publication Date: 2009
The Good Doctors: The Medical Committee for Human Rights and the Struggle for Social Justice in Health Care by
In the summer of 1964 medical professionals, mostly white and northern, organized the Medical Committee for Human Rights (MCHR) to provide care and support for civil rights activists organizing black voters in Mississippi. They left their lives and lucrative private practices to march beside and tend the wounds of demonstrators from Freedom Summer, the March on Selma, and the Chicago Democratic Convention of 1968. Galvanized and sometimes radicalized by their firsthand view of disenfranchised communities, the MCHR soon expanded its mission to encompass a range of causes from poverty to the war in Vietnam. They later took on the whole of the United States healthcare system. MCHR doctors soon realized fighting segregation would mean not just caring for white volunteers, but also exposing and correcting shocking inequalities in segregated health care. They pioneered community health plans and brought medical care to underserved or unserved areas. Though education was the most famous battleground for integration, the appalling injustice of segregated health care levelled equally devastating consequences. Award-winning historian John Dittmer, author of the classic civil rights history Local People: The Struggle for Civil Rights in Mississippi, has written an insightful and moving account of a group of idealists who put their careers in the service of the motto "Health Care Is a Human Right."
Call Number: Ebook
Publication Date: 2017
The Immortal Life of Henrietta Lacks by
#1 NEW YORK TIMES BESTSELLER * "The story of modern medicine and bioethics--and, indeed, race relations--is refracted beautifully, and movingly."--Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE * ONE OF THE "MOST INFLUENTIAL" (CNN), "DEFINING" (LITHUB), AND "BEST" (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE * ONE OF ESSENCE'S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS * WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review * Entertainment Weekly * O: The Oprah Magazine * NPR * Financial Times * New York * Independent (U.K.) * Times (U.K.) * Publishers Weekly * Library Journal * Kirkus Reviews * Booklist * Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells--taken without her knowledge--became one of the most important tools in medicine: The first "immortal" human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb's effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta's family did not learn of her "immortality" until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family--past and present--is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family--especially Henrietta's daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn't her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Call Number: W20.55 .E7 S55 2010 (Kornhauser) / RC265.6.L24 S55 2010 (Ekstrom)
Publication Date: 2010
Infectious Fear: Politics, Disease, and the Health Effects of Segregation by
For most of the first half of the twentieth century, tuberculosis ranked among the top three causes of mortality among urban African Americans. Often afflicting an entire family or large segments of a neighborhood, the plague of TB was as mysterious as it was fatal. Samuel Kelton Roberts Jr. examines how individuals and institutions--black and white, public and private--responded to the challenges of tuberculosis in a segregated society. Reactionary white politicians and health officials promoted "racial hygiene" and sought to control TB through Jim Crow quarantines, Roberts explains. African Americans, in turn, protested the segregated, overcrowded housing that was the true root of the tuberculosis problem. Moderate white and black political leadership reconfigured definitions of health and citizenship, extending some rights while constraining others. Meanwhile, those who suffered with the disease--as its victims or as family and neighbors--made the daily adjustments required by the devastating effects of the "white plague." Exploring the politics of race, reform, and public health, Infectious Fear uses the tuberculosis crisis to illuminate the limits of racialized medicine and the roots of modern health disparities. Ultimately, it reveals a disturbing picture of the United States' health history while offering a vision of a more democratic future.
Call Number: RA644 .T7 R585 2009 (Ekstrom)
Publication Date: 2009
Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present by
From the era of slavery to the present day, the first full history of black America’s shocking mistreatment as unwilling and unwitting experimental subjects at the hands of the medical establishment. Medical Apartheidis the first and only comprehensive history of medical experimentation on African Americans. Starting with the earliest encounters between black Americans and Western medical researchers and the racist pseudoscience that resulted, it details the ways both slaves and freedmen were used in hospitals for experiments conducted without their knowledge—a tradition that continues today within some black populations. It reveals how blacks have historically been prey to grave-robbing as well as unauthorized autopsies and dissections. Moving into the twentieth century, it shows how the pseudoscience of eugenics and social Darwinism was used to justify experimental exploitation and shoddy medical treatment of blacks, and the view that they were biologically inferior, oversexed, and unfit for adult responsibilities. Shocking new details about the government’s notorious Tuskegee experiment are revealed, as are similar, less-well-known medical atrocities conducted by the government, the armed forces, prisons, and private institutions. The product of years of prodigious research into medical journals and experimental reports long undisturbed,Medical Apartheidreveals the hidden underbelly of scientific research and makes possible, for the first time, an understanding of the roots of the African American health deficit. At last, it provides the fullest possible context for comprehending the behavioral fallout that has caused black Americans to view researchers—and indeed the whole medical establishment—with such deep distrust. No one concerned with issues of public health and racial justice can afford not to readMedical Apartheid, a masterful book that will stir up both controversy and long-needed debate.
Call Number: Ebook
Publication Date: 2006
Medical Bondage: Race, Gender, and the Origins of American Gynecology by
The accomplishments of pioneering doctors such as John Peter Mettauer, James Marion Sims, and Nathan Bozeman are well documented. It is also no secret that these nineteenth-century gynecologists performed experimental caesarean sections, ovariotomies, and obstetric fistula repairs primarily on poor and powerless women. Medical Bondage breaks new ground by exploring how and why physicians denied these women their full humanity yet valued them as "medical superbodies" highly suited for medical experimentation. In Medical Bondage, Cooper Owens examines a wide range of scientific literature and less formal communications in which gynecologists created and disseminated medical fictions about their patients, such as their belief that black enslaved women could withstand pain better than white "ladies." Even as they were advancing medicine, these doctors were legitimizing, for decades to come, groundless theories related to whiteness and blackness, men and women, and the inferiority of other races or nationalities. Medical Bondage moves between southern plantations and northern urban centers to reveal how nineteenth-century American ideas about race, health, and status influenced doctor-patient relationships in sites of healing like slave cabins, medical colleges, and hospitals. It also retells the story of black enslaved women and of Irish immigrant women from the perspective of these exploited groups and thus restores for us a picture of their lives.
Call Number: Ebook
Publication Date: 2017
The Protest Psychosis: How Schizophrenia Became a Black Disease by
Revolution was in the air in the 1960s. Civil rights protests demanded attention on the airwaves and in the streets. Anger gave way to revolt, and revolt provided the elusive promise of actual change. But a very different civil rights history evolved at the Ionia State Hospital for the Criminally Insane in Ionia, Michigan. Here, far from the national glare of sit-ins, boycotts, or riots, African American men suddenly appeared in the asylum’s previously white, locked wards. Some of these men came to the attention of the state after participating in civil rights demonstrations, while others were sent by the military, the penal system, or the police. Though many of the men hailed from Detroit, ambulances and paddy wagons brought men from other urban centers as well. Once at Ionia, psychiatrists classified these men under a single diagnosis: schizophrenia.InThe Protest Psychosis, psychiatrist and cultural critic Jonathan Metzl tells the shocking story of how schizophrenia became the diagnostic term overwhelmingly applied to African American men at the Ionia State Hospital, and how events at Ionia mirrored national conversations that increasingly linked blackness, madness, and civil rights. Expertly sifting through a vast array of cultural documents—from scientific literature, to music lyrics, to riveting, tragic hospital charts—Metzl shows how associations between schizophrenia and blackness emerged during the 1960s and 1970s in ways that directly reflected national political events. As he demonstrates, far from resulting from the racist intentions of individual doctors or the symptoms of specific patients, racialized schizophrenia grew from a much wider set of cultural shifts that defined the thoughts, actions, and even the politics of black men as being inherently insane.Ultimately,The Protest Psychosisprovides a cautionary tale of how anxieties about race continue to impact doctor-patient interactions, even during our current, seemingly post-race era of genetics, pharmacokinetics, and brain scans.
Call Number: RC451.5.N4 M48 2009 (Ekstrom)
Publication Date: 2009
The Public Health Nurses of Jim Crow Florida by
Florida Historical Society Harry T. and Harriette V. Moore Award Highlighting the long unacknowledged role of a group of pioneering professional women, The Public Health Nurses of Jim Crow Florida tells the story of healthcare workers who battled racism in a state where white supremacy formed the bedrock of society. They aimed to serve those people out of reach of modern medical care. In the era of Jim Crow discrimination, their marginalization in medical facilities?along with the overall medical neglect to address their health?meant that many African Americans in rural communities rarely saw doctors. Christine Ardalan shows how Florida?s public health nurses took up the charge, traveling into the Florida scrub to deliver health improvement information to the homes of black and white residents, many of whom were illiterate. Drawing on a rich body of public health and nursing records, Ardalan draws attention to the innovative ways nurses bridged the gap between these communities and government policies that addressed threats of infection and high rates of infant and maternal mortality. From the progressive era to the civil rights movement, Florida?s public health nurses worked to overcome the constraints of segregation. Their story is echoed by the experiences of today?s community health nurses, who are keenly aware that maintaining healthy lives for all Americans requires tackling the nation?s deep-rooted cultural challenges.
Call Number: WY11 .AF4 A73 2019 (Kornhauser)
Publication Date: 2019
Race, Science, and Medicine, 1700-1960 by
Considering cases from Europe to India, this collection brings together current critical research into the role played by racial issues in the production of medical knowledge. Confronting such controversial themes as colonialism and medicine, the origins of racial thinking and health and migration, the distinguished contributors examine the role played by medicine in the construction of racial categories.
Call Number: R133 .R33 1999 (Robotic Retrieval System)
Publication Date: 1999
Sex, Sickness, and Slavery: Illness in the Antebellum South by
Marli F. Wiener skillfully integrates the history of medicine with social and intellectual history in this study of how race and sex complicated medical treatment in the antebellum South. Sex, Sickness, and Slavery argues that Southern physicians' scientific training and practice uniquely entitled them to formulate medical justification for the imbalanced racial hierarchies of the period. Challenged with both helping to preserve the slave system (by acknowledging and preserving clear distinctions of race and sex) and enhancing their own authority (with correct medical diagnoses and effective treatment), doctors sought to understand bodies that did not necessarily fit into neat dichotomies or agree with suggested treatments. Focusing on Southern states from Virginia to Alabama, Weiner examines medical and lay perspectives on the body through a range of sources, including medical journals, notes, diaries, daybooks, and letters. These personal and revealing sources show how physicians, medical students, and patients--both free whites and slaves--felt about vulnerability to disease and mental illnesses, how bodily differences between races and sexes were explained, and how emotions, common sense, working conditions, and climate were understood to have an effect on the body. Physicians' authority did not go uncontested, however. Weiner also describes the ways in which laypeople, both black and white, resisted medical authority, clearly refusing to cede explanatory power to doctors without measuring medical views against their own bodily experiences or personal beliefs. Expertly drawing the dynamic tensions during this period in which Southern culture and the demands of slavery often trumped science, Weiner explores how doctors struggled with contradictions as medicine became a key arena for debate over the meanings of male and female, sick and well, black and white, North and South.
Call Number: Ebook
Publication Date: 2012
Sick from Freedom: African-American Illness and Suffering During the Civil War and Reconstruction by
Bondspeople who fled from slavery during and after the Civil War did not expect that their flight toward freedom would lead to sickness, disease, suffering, and death. But the war produced the largest biological crisis of the nineteenth century, and as historian Jim Downs reveals in thisgroundbreaking volume, it had deadly consequences for hundreds of thousands of freed people.In Sick from Freedom, Downs recovers the untold story of one of the bitterest ironies in American history - that the emancipation of the slaves, seen as one of the great turning points in U.S. history, had devastating consequences for innumerable freedpeople. Drawing on massive new research into therecords of the Medical Division of the Freedmen's Bureau - a nascent national health system that cared for more than 500,000 freed slaves - he shows how the collapse of the plantation economy released a plague of lethal diseases. With emancipation, African Americans seized the chance to move,migrating as never before. But in their journey to freedom, they also encountered yellow fever, smallpox, cholera, dysentery, malnutrition, and exposure.To address this crisis, the Medical Division hired more than 120 physicians, establishing some forty underfinanced and understaffed hospitals scattered throughout the South, largely in response to medical emergencies. Downs shows that the goal of the Medical Division was to promote a healthyworkforce, an aim which often excluded a wide range of freedpeople, including women, the elderly, the physically disabled, and children. Downs concludes by tracing how the Reconstruction policy was then implemented in the American West, where it was disastrously applied to Native Americans. Thewidespread medical calamity sparked by emancipation is an overlooked episode of the Civil War and its aftermath, poignantly revealed in Sick from Freedom.
Call Number: RA448.5.N4 D69 2012 (Ekstrom)
Publication Date: 2012
Slavery, Disease, and Suffering in the Southern Lowcountry by
On the eve of the Revolution, the Carolina lowcountry was the wealthiest and unhealthiest region in British North America. Slavery, Disease, and Suffering in the Southern Lowcountry argues that the two were intimately connected: both resulted largely from the dominance of rice cultivation on plantations using imported African slave labor. This development began in the coastal lands near Charleston, South Carolina, around the end of the seventeenth century. Rice plantations spread north to the Cape Fear region of North Carolina and south to Georgia and northeast Florida in the late colonial period. The book examines perceptions and realities of the lowcountry disease environment; how the lowcountry became notorious for its 'tropical' fevers, notably malaria and yellow fever; how people combated, avoided or perversely denied the suffering they caused; and how diseases and human responses to them influenced not only the lowcountry and the South, but the United States, even helping to secure American independence.
Call Number: RA418.3.U6 M35 2011 (Ekstrom)
Publication Date: 2011
Water, Race, and Disease by
A qualitative and quantitative analysis of the effect of public water and sewer systems on African American life expectancy in the Jim Crow era. Why, at the peak of the Jim Crow era early in the twentieth century, did life expectancy for African Americans rise dramatically? And why, when public officials were denying African Americans access to many other public services, did public water and sewer service for African Americans improve and expand? Using the qualitative and quantitative tools of demography, economics, geography, history, law, and medicine, Werner Troesken shows that the answers to these questions are closely connected. Arguing that in this case, racism led public officials not to deny services but to improve them--the only way to "protect" white neighborhoods against waste from black neighborhoods was to install water and sewer systems in both--Troesken shows that when cities and towns had working water and sewer systems, typhoid and other waterborne diseases were virtually eradicated. This contributed to the great improvements in life expectancy (both in absolute terms and relative to whites) among urban blacks between 1900 and 1940. Citing recent demographic and medical research findings that early exposure to typhoid increases the probability of heart problems later in life, Troesken argues that building water and sewer systems not only reduced waterborne disease rates, it also improved overall health and reduced mortality from other diseases. Troesken draws on many independent sources of evidence, including data from the Negro Mortality Project, econometric analysis of waterborne disease rates in blacks and whites, analysis of case law on discrimination in the provision of municipal services, and maps showing the location of black and white households. He argues that all evidence points to one conclusion: that there was much less discrimination in the provision of public water and sewer systems than would seem likely in the era of Jim Crow.
Call Number: RA448.5.N4 T76 2004 (Ekstrom)
Publication Date: 2004
What's Wrong with the Poor? Psychiatry, Race, and the War on Poverty by
In the 1960s, policymakers and mental health experts joined forces to participate in President Lyndon Johnson's War on Poverty. In her insightful interdisciplinary history, physician and historian Mical Raz examines the interplay between psychiatric theory and social policy throughout that decade, ending with President Richard Nixon's 1971 veto of a bill that would have provided universal day care. She shows that this cooperation between mental health professionals and policymakers was based on an understanding of what poor men, women, and children lacked. This perception was rooted in psychiatric theories of deprivation focused on two overlapping sections of American society: the poor had less, and African Americans, disproportionately represented among America's poor, were seen as having practically nothing. Raz analyzes the political and cultural context that led child mental health experts, educators, and policymakers to embrace this deprivation-based theory and its translation into liberal social policy. Deprivation theory, she shows, continues to haunt social policy today, profoundly shaping how both health professionals and educators view children from low-income and culturally and linguistically diverse homes.
Call Number: HV95 .R39 2013 (Ekstrom)
Publication Date: 2013
Working Cures: Healing, Health, and Power on Southern Slave Plantations by
Exploring the charged topic of black health under slavery, Sharla Fett reveals how herbalism, conjuring, midwifery, and other African American healing practices became arts of resistance in the antebellum South. Fett shows how enslaved men and women drew on African precedents to develop a view of health and healing that was distinctly at odds with slaveholders' property concerns. While white slaveowners narrowly defined slave health in terms of "soundness" for labor, slaves embraced a relational view of health that was intimately tied to religion and community. African American healing practices thus not only restored the body but also provided a formidable weapon against white objectification of black health. Enslaved women played a particularly important role in plantation health culture: they made medicines, cared for the sick, and served as midwives in both black and white households. Their labor as health workers not only proved essential to plantation production but also gave them a basis of authority within enslaved communities. Not surprisingly, conflicts frequently arose between slave doctoring women and the whites who attempted to supervise their work, as did conflicts related to feigned illness, poisoning threats, and African-based religious practices. By examining the deeply contentious dynamics of plantation healing, Fett sheds new light on the broader power relations of antebellum American slavery.
Call Number: RA448.5.N4 F48 2002 (Ekstrom)
Publication Date: 2002